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June 13, 2011

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Hold Onto Your Dreams...

A name means something.

Kathryn means “pure.”

David means “beloved.”

My friends have a son named Koa which means “fearless.”

My full name Jonathan means “gift of God.” I tell this to my wife every time she gets mad at me. : )

Joshua means “God rescues.” I learned this at the memorial service of my friend’s son, Joshua Frase.

Joshua was born with a rare muscular disease, Myotubular Myopathy, and he wasn’t supposed to live for more than a day but he beat the odds and lived till he was 15 years old.

He died effortlessly on Christmas Eve, 2010, in his sleep when his heart simply stopped beating.

I was in the middle of writing The Seed when I heard the news that my friends Paul and Alison Frase had lost their son. At the memorial service Alison and Paul spoke about the meaning of Joshua’s name, his influence on medical researchers around the world and his desire to be a scientist one day so he could find a cure for his disease. They also shared a poem that Joshua wrote...

Joshua FraseHold Onto Your Dreams

Josh,

son of Paul and Alison

brother of Isabella,

caring, funny, smart, honest

lover of PS3, my parents and my friends

Who feels happy when playing with my friends,

sleepy when I read a book,

and mad when my sister annoys or

tattletales on me!

Who needs my parents, friends, and a nurse to stay at home with me

Who gives love, advice, and attention in class

Who fears the dark,

a day without video games,

and how will I live on my own when I grow up

Who would like to see all of Europe, especially Great Britain,

The Daytona 500,

And a Cure for my disorder

Joshua Frase

I left the memorial service more inspired than ever. Here I was writing a book about a guy named Joshua who was searching for his purpose, while a teenager named Joshua showed me and the world what it was like to plant seeds of purpose every day.

And while Joshua’s life may have been cut short, his dream and purpose live on. Joshua’s parents believe that Joshua’s life and The Joshua Frase Foundation will change the face of neuro-muscular science as we know it... and I do too!

So I hope you will join me in helping Josh hold onto his dream and rescue all those who are waiting for a cure.

 

Thank You!


-Jon

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Joshua FraseAbout The Joshua Frase Foundation

Photo to right includes Joshua, Alison (Joshua's Mom), Isabella (Joshua's Sister), and Paul (Joshua's Dad).

 


 

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